PAX3-FOXO1 alveolar rhabdomyosarcoma patient
Assalamualaikum and hi,My daughter diagnosed with PAX3-FOXO1 alveolar rhabdomyosarcoma since 2016.Despite few round of chemotherapy, radiotherapy and surgery, the cancer cell is coming back multiple times.Currently, she is on Vinolrebin, sirolimus and cyclophosphamide and having her treatment at PPUM pediatric oncology department. Currently, we are sending her sample tissue for DNA sequencing.I would like to get your 2nd opinion on her treatment. Appreciate your advise.Regards,Zul
Regarding your inquiry, we would be happy to provide a second opinion on her current treatment approach. It is reassuring that her medical team is already exploring cutting-edge options like DNA sequencing to better understand her cancer’s genetic profile. This will certainly help in determining if there are any potential treatment modifications or clinical trial opportunities that could offer better outcomes.
To ensure we offer the most accurate and tailored advice, we would need to review your daughter’s detailed medical records, including her pathology reports, treatment history, and any other relevant diagnostic information, such as the DNA sequencing results once available. Our team of pediatric oncology specialists, along with our multidisciplinary experts, would be happy to evaluate her case comprehensively.
We recommend scheduling a consultation with our pediatric oncology team to discuss her current treatment in more detail, and we will be happy to guide you through any additional treatment options or clinical trials that may be appropriate. We also suggest considering a discussion about her long-term care plan to manage the effects of multiple rounds of treatment and address any ongoing challenges she may be facing.
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